FLY-IN INTELLIGENCELobbying brief
NFXF Advocacy Day 2027
National Fragile X FoundationDossier at a glance
The event and the influence behind it
About this event
Fragile X families, self-advocates, caregivers, clinicians, and researchers meet members of Congress and staff in Washington February 22–23. Their asks include continued and increased federal research funding plus policy and legislative priorities supporting people and families living with Fragile X.
Federal disclosure record
Lobbying intelligence
Reported amounts, disclosed lobbyists, and the organization’s exact issue language—drawn from public Lobbying Disclosure Act records.
Sum of reported income or expenses across linked, version-deduplicated filings. In-house expenses may include outside-firm fees, so this is not a unique organization-wide spending total. Linked filing years: 2026. Newest linked quarterly report: Q3 2026. Newest source posted Oct 20, 2026. Coverage may be incomplete; historical disclosures do not establish a current event agenda or attendance.
Lobbyists named in linked filings4
Exact issue language · as filed
Legislation directly impacting disability and rare disease communities; Issues around the funding of rare disease research
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SEE A FINISHED HEALTHCARE EXAMPLE
Three days of Hill visits. Two Medicare access questions.
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Topics in Filings
9Policy topics named in the organization's LD-2 disclosures. These show areas of lobbying activity, not a verified agenda for this event.
+ 8 more topics in the full dossier
Pulled from the org’s own LD-2 disclosures. See the source filings ↓
Federal lobbying footprint
Where the filings concentrate
LDA issue areas ranked by the number of distinct filings in which they appear. Repeat imports of the same filing are counted once.
Capitol Hill traffic
Who else is in town that week
Other advocacy events within ±7 days can compete for staff time—or reveal useful coalition and scheduling opportunities.
+ 12 more overlapping or related mobilizations in the full Hill traffic map
Event facts
Quick answers
When is NFXF Advocacy Day 2027?
NFXF Advocacy Day 2027 takes place Feb 22, 2027 – Feb 23, 2027.
Where is NFXF Advocacy Day 2027 held?
NFXF Advocacy Day 2027 is held at Washington, DC.
Who runs NFXF Advocacy Day 2027?
NFXF Advocacy Day 2027 is organized by National Fragile X Foundation.
How do I register for NFXF Advocacy Day 2027?
Registration is handled by National Fragile X Foundation — see the official event page for registration details. Official event page →
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