FLY-IN INTELLIGENCELobbying brief
NDSC Down Syndrome Policy Summit 2026
National Down Syndrome CongressDossier at a glance
The event and the influence behind it
About this event
National Down Syndrome Congress' 2026 Policy Summit. The official event page lists advocacy training on September 29 and organization-scheduled meetings with elected officials on Capitol Hill on September 30.
Meeting intelligence
What they’re likely bringing to the Hill
Positions extracted from the organization’s federal LD-2 disclosures. These are evidence-backed signals—not a confirmed agenda or leave-behind.
Opposing · 1
+ 1 more position surfaced in filings — available in the full dossier
Federal disclosure record
Lobbying intelligence
Retained spend, disclosed lobbyists, and the organization’s exact issue language—drawn from public Lobbying Disclosure Act records.
Current disclosed lobbyists1
Exact issue language · as filed
Protect the US Department of Education; IDEA Full Funding Act (S.1277/HR 2598); Protect ED Acts (HR 433, HR2333); Oppose various bills to eliminate Dept of Ed and block grant IDEA funds (S. 1402, HR 899, HR 838, S. 309)
View filing ↗Full intelligence locked
Connect the event to the surrounding activity.
See every registered lobbyist, the complete filing language, bills and filing-derived policy priorities, cross-client issue patterns, and the organizations active around this event.
Topics in Filings
22Policy topics named in the organization's LD-2 disclosures. These show areas of lobbying activity, not a verified agenda for this event.
+ 21 more topics in the full dossier
Pulled from the org’s own LD-2 disclosures. See the source filings ↓
Federal lobbying footprint
Where the filings concentrate
LDA issue areas ranked by the number of distinct filings in which they appear. Repeat imports of the same filing are counted once.
+ 5 more issue areas in the full intelligence view
Bills named in federal filings
These bills appear in the host organizations’ LD-2 disclosures. They provide policy context and are not presented as the event’s official agenda.
SSI Savings Penalty Elimination Act
Sponsor: Sen. Catherine Cortez Masto [D-NV] (D)
Status: Read twice and referred to the Committee on Finance.
Filing evidence: Named in 2 LD-2 filings.
+ 13 more bills named in filings — full list in the dossier
Capitol Hill traffic
Who else is in town that week
Other advocacy events within ±7 days can compete for staff time—or reveal useful coalition and scheduling opportunities.
+ 12 more overlapping or related mobilizations in the full Hill traffic map
Congressional calendar
Hill activity during this fly-in
Committee hearings and markups on the same issue area during or near this fly-in window.
SenateSenate Finance · Finance
Thu, Sep 24, 10:00 AM · Business meeting to consider the nominations of Gerard Klomp, of Utah, to be Deputy Secretary, and Ge Bai, of Virginia, to be an A…
+ 3 more relevant Hill calendar items with full access
Event facts
Quick answers
When is NDSC Down Syndrome Policy Summit 2026?
NDSC Down Syndrome Policy Summit 2026 takes place Sep 29, 2026 – Sep 30, 2026.
Where is NDSC Down Syndrome Policy Summit 2026 held?
NDSC Down Syndrome Policy Summit 2026 is held at Omni Shoreham Hotel and Capitol Hill, Washington, DC.
Who runs NDSC Down Syndrome Policy Summit 2026?
NDSC Down Syndrome Policy Summit 2026 is organized by National Down Syndrome Congress.
How do I register for NDSC Down Syndrome Policy Summit 2026?
Registration is handled by National Down Syndrome Congress — see the official event page for registration details. Official event page →
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